Sunday, January 31, 2021

HUMIRA IS AN EPIC FAILURE

On Italian train w/ non-Fed up knees.
So, shortly after that last post things got pretty bad. I went and played basketball and while I was able to do so without too much pain, it left me in a horrible inflammation spiral. I was literally limping around for four days and my whole body hurt. The basketball reaction was just a symptom of a larger problem though, my medication not working.

Even after things quieted down after the basketball fiasco, other things started to go wrong. I started getting arthritis in joints I hadn't felt since before being treated. It was back in full force. Honestly, Humira seemed to be doing nothing. I had never felt even close to that bad since I started treatment. Eating hurt. Typing hurt. Basically just existing hurt when it was really bad. Also, with a raging auto-immune condition, you get fatigue. And that has hit me hard too. I am tired all the time. I'll sleep for ten hours and then be ready for bed eight hours later.

So yeah! Needless to say, running has gone by the wayside. Luckily with COVID there are no races to fuck up, so it's whatever. I am managing to go out there once a week and run a 5k. That seems to be tolerated enough by my body and at least let's me feel like I'm doing something. But other than that it is a lot of sitting around on the couch. Even just walking around and doing stuff for any extended period of time can irritate my knees, so I'm laying pretty low.

I have an appointment with the rheumatologist on Tuesday, so I'll be reporting this all to her then. I have a feeling I'll be switching medications. Which, I'm all for. I am FOUR MONTHS into Humira treatment and I've never felt less relieved while being medicated for psoriatic arthritis. So Humira can go fuck itself. I mean, it's probably not the medication's fault. Whatever "pathway" or whatever it is called is being blocked is obviously not the main cause of my inflammation. Methotrexate and leflunomide basically just slow down your whole immune system, while Humira targets one part... I'm pretty sure it targets the wrong part for my specific cause. Which is why it works for like 2/3rds of people and the other third have to find something else.

Happy 2021 I guess.